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News and stories

Read the latest news from across Action on Hearing Loss and stories of people with deafness, hearing loss and tinnitus.


A clinical trial of a new investigational drug for vertigo in Ménière’s disease – OTO-104

A clinical study team are looking for volunteers to test their new investigational drug, OTO-104, for vertigo episodes in Ménière’s disease. By the OTO-104 Study Team What is a clinical trial? Clinical trials help scientists and doctors explore whether a medical strategy, treatment, or device is safe and effective for humans. Information obtained during this trial may be useful scientifically and therefore may be helpful to people with Ménière’s disease in the future. It is not known if the Investigational Product (IP)...

Our future research leaders

Last month, we invited our PhD students and our early-career Fellows to visit our head office in Highbury, to find out more about the work we do, to meet each other and to meet our staff. Marta Narkiewicz, from our research team, tells us more about the day. Our goal is to accelerate the discovery and development of treatments for hearing loss and tinnitus. This aim can only be achieved through the work of many scientists. To increase the number...

“I would never have admitted I couldn’t hear”

Elizabeth started to lose her hearing in her 40’s and found she was missing out on conversations. Thanks to support from Action on Hearing Loss, she is now getting the most out of her hearing aids and is more connected to friends and family. Elizabeth, from East Belfast, started to lose her hearing when she was in her 40s. She said: “I was in York for a conference in 1991 and I was on an open top bus. It was very...

Interview with the Information Line

Vicky Thurston works for the Information Line here at Action on Hearing Loss. After starting at the charity as a six week temp, she has now worked here for the last 6 years. In this blog post, Vicky tells us how all about the information line and how important it can be to those calling in. When did you start working on the Information Line? I started six years ago this coming June, originally as a six week temp to cover...

Scientifically speaking – Professor Karen Avraham

Professor Karen Avraham is a world-leading genetic specialist who runs her own lab at Tel Aviv University. Her research focusses on understanding the genetic basis of hereditary hearing loss. By Professor Karen Avraham The World Health Organisation estimates that there are 466 million people worldwide with a hearing loss. This is a problem that has an impact on children as they’re discovering the world, but also has long-term repercussions for their development into adults. We’re still some years from effective treatments using...

Our search for treatments to silence tinnitus

Our Executive Director of Research, Dr Ralph Holme, updates us on how the charity is funding tinnitus research. Tinnitus – a roaring, hissing, ringing or any other sound heard in one or both ears or in the head that has no external source – affects eight million people in the UK alone. For many of those living with it, it can cause serious anxiety, stress, sleeping disorders and depression. While there are effective ways to help people manage their tinnitus,...

New tech for a new decade

For all things tech, there’s no better way to start the new decade than with the Consumer Electronics Show – CES 2020. Held every January in Las Vegas, it’s the largest event of its kind. This year among the mini drones, robotics and new concept electric cars are some exciting innovations for people with hearing loss and deafness. HeardThat App The drive towards harnessing the computing power of smartphones for hearing assistance took another step forward with the HeardThat app. Developed...

“Don’t let anyone tell you there’s nothing you can do about tinnitus”

Laura James, 30, an audiologist from Leeds, has severe hearing loss and constant tinnitus. But years of therapy and practise have taught her the best ways to manage the condition. “LOOKING back, I always had tinnitus but I wasn’t aware as a child that it was anything but normal. I thought everybody must have it. Between the ages of 0-16, I had an undiagnosed hearing loss, although we didn’t know that then. My mum was told by various doctors throughout...

“Tinnitus can be isolating”

Profoundly deaf since birth, Professor of forensic biology Graham Williams, 43, has tinnitus, and finds the biggest trigger is background noise. “I AM profoundly deaf and have been since birth. To manage with this, I rely on lipreading and powerful hearing aids. I also have tinnitus. My tinnitus takes the form of whirring noises, clicks, whistling and the occasional explosion. Sometimes the sounds can be very jarring and other times it can be rather melodious, which means I am looking for...

Ken’s story

Ken leads the Belfast Fundraising Volunteer group. The team have raised more than £3000 for Action on Hearing Loss in 2019, and have lots planned for the New Year. Who are the Fundraising Volunteer Group? There are five of us in the team at the moment and hopefully soon there will be two more. I’m a great believer in team, we work together and that’s what it’s all about. Our members are Paul Stewart, Larry Kelly, Heather Kelly and Paul Taylor....